Tags
General practitioner, Hip Replacement, hip resurfacing, Influenza-like illness, Magnetic resonance imaging, metal, pain, Patient, Prosthesis, surgeon, X-ray
My View:
This comment from a reader overnight is typical of what I read time and again.
NOTE: This blog is about surgeons – not the actual device used in the replacement.
The surgeon remains in denial until he either loses the patient – they go elsewhere – or the patient through their own resourcefulness gets the surgeon to have a look at the base data and do the necessary tests.
In this true life story the surgeon remains with his head up where the sun doesn’t shine (3 years) to the point that he loses the patient – is this the ultimate arrogance or malpractice?
I know what this feels like – I had “normal X-Rays” supposedly for nearly a year, was treated for back problem, rheumatoid arthritis which nearly killed my liver, before they finally did a MRI – admittedly I didn’t see a surgeon up front – just GP’s and specialists.
It does not matter what kind of hip replacement it is – the point of this Blog is that:
- This pattern of behavior and lack of intellectual honesty by certain doctors is not acceptable
- What is more important??? Their precious medical pride and opinion or their patient suffering for years and being made to feel like an imbecile for complaining…
- This is surgeon error – most likely 9 times out of 10.
As a good friend of mine says:
Do NOT go by just your surgeons observation that the component is placed fine, that the fault is a metal on metal device. Get other opinions!! It is never too late, even after the revision has been done.
Here is the comment:
Hip Issues for 3 Years….
I had Hip Replacement in August 2008. I felt fine until September 2009 when I started having all kinds of odd medical problems.
Chest pain with tachycardia, shortness of breath with flu-like symptoms, finally random swelling of finger joints and pain in my feet.
All of these were worked up by cardiology, rheumatology and my internist.
Every test came back normal.
In the fall of 2010, I started having pain in the replaced hip. This got my attention, but I lived with it until spring of 2011 when I finally went to see my original surgeon. I did have metal ion levels drawn before the visit and they were elevated.
His attitude after an x-ray that was “perfect” was that my pain was coming from my back. That my metal testing hadn’t been done in the right lab so the results were not reliable.
After much pushing on my part he agreed to repeat the metal levels and order an MRI of my hip and back.
The results came back, the metal levels even higher than before and the MRI of my hip showing fluid and debris. I never had the MRI of my back.
At this point in time the surgeon agreed there could be a problem with the prosthesis and that it warranted watching.
It happens that both myself and my husband are in medicine so we pulled out all resources and spoke to experts in the field, everyone agreeing that the implant had to come out.
I sought the opinion of another surgeon (with lots of reparative experience) and the only logical solution seemed to be to have a total hip replacement with a prosthesis that was not metal on metal.
He felt strongly that I had metallosis from the prosthesis. On August 15th I had a revision of my metal on metal to a ceramic on “plastic” total hip.
I too believe there are many more people out there with metal on metal hips that are problematic with vague symptoms and confusing presentations of metallosis.
Lesson:
You know our pain and your body better than anyone and while you have a vested interest it is only in your health – not professional reputation or medical opinion.
We have to take charge – if you are feeling sick and sore, then there will be a reason… trust yourself and don’t suffer in silence!
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What a familiar story’ I likewise had the ultimate insult’ when latest orthopod, sticking up for his collegue-as they all do in this small-country of NZ.Is that my PAIN is from my KNEE, and other signs-well documentated over 7 years-are/were MAKE BELIEF. See my Dramtologist tomorrow-as instructed to do from o’seas Company I am working with-spent a fortune there around the 2 year mark,with latest Lab Report-on high metal toxicity-tried to be kept from my eyesight (labelled LEGALLY SENSITIVE and priveldged’ How stupid do they think we are-Know thy body, and keep on with TRUTH, that orthopaedic world try to DENY, and go on and on doing so.
My Surgeon-that caused ALL the problems, was totally in denial, and continued that way for TWO YEARS, and stll believes his OWN fairy story.and Still not censured in any way.Even at Govt level-he is under protection-as our ACC sytem demand of Sending you latest email.
More and more people are coming forward, and we do need to stick together. Thanks to Earl for publishing out stories.
I had my hip resurfaced in Jan 2010 with a M on M divice.I was not called for my one year post op clinic appointment so chased it up and eventually saw my consultant in April 2011.My X ray was normal but my hip had developed an audible clunking sound but I was not in pain. My consultant said this was normal and said he would see me again in one year. By June I was aware of concerns around these devices and approached my reluctant G.P who did not contact me regarding having my Ion levels checked and I ended up having them done in out patients having pushed to be heard. My ion levels were up in the thousands and by now I was feeling breathless,very anxious and generally unwell.My Revision surgery was done some eighteen months after my original surgery and I believe I had Metallosis although I have not been told this.I had a sack of milky brown fluid around my hip and I had tissue that needed to be debrided in theatre.My Cobalt level came back at 3300 nanomols and chromium at 1900 nanomols.I had a Hickman line inserted for IV antibiotics and felt very unwell for some time.I was 43 years when I had my first surgery and I am now left with a 2cm leg length discrepancy that causes lower back pain.
Hi Clare
what a dreadful experience. I am still learning to walk properly again after my revision 1 Sept 2011. which was 3 years and 2 weeks after my first replacement with a Smith and Nephew Birmingham Spectron Total Hip Replacement. I don’t have a leg length discrepancy that I am aware of but I still limp and have some lower back issues which are leading to numbness in my right foot in particular.
What brand of hip replacement did you have originally? What country are you in?
Kind regards
Earl
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More and more people are sharing their stories of suffering because of this hip debacle. This is great, let’s others know they are not alone, and in many instances shared information has helped people.
However, getting well and regaining one’s health is number one, after going through any hip or knee procedure.
Once you have become well again, what are you going to do in order for you to help others?
If a medical device manufacturer is at fault, then it is your obligation to take whatever steps are necessary to see devices are properly tested, and laws that were written in the 1970’s are changed. Changed so the device manufacturer, if at fault, is no longer immune from an individual seeking compensation.
If you don’t help, these laws will remain in tack until another unecessary life altering disaster such as we are experiencing can be avoided; metal on metal hips.
Aside from the different device manufacturers and their hip devices, the facts seem apparent metal on metal may be hazerdous to one’s health. If you are experiencing difficulties with such a device, see your surgeon, if they don’t correct the problem then find a specialist that deals with such problems.
Respectfully
Howard Sadwin
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Good job guys
Remember your hips need your bodys ability to lubercate the repaired and replaced joints with its own synovial fluid. I was never told if I had dysplasia, but I had my first hip injury at the age of 4 1/2 in gymnastics, and by the time I was 45 I was told I would not make it till I was 50 without a replacement. I had that replacement in 2005 and the hip was recalled in 2008. Ceramic-on-ceramic. A good replacement, good company made the product ( I met several reps in the 28 years I worked in hospital.)
6 years out squeaking and an awful grinding sound started. My Doctor mentioned an H.A. injections that our FDA has not approved for the hip replacements. I decided to try oral supplements. One with 1000mg Collagen type 2 and 100 mg of a 1500 to 3000 dalton wt. H.A. In less that one week no squeaking in a month except for 3 days when the temperature was in the 90’s and relative dupoints in the upper 60’s and mid 70’s. I was overheated. I am on my own trial here, as our Doctors do not know much about supplements. I now have added a product that is reported to be in the 2.4 dalton wt. and only 3mg. So far no squeaking or pain at all.
I have also ordered a product with 1 million dalton wt. at 100mg dose.
Wish I knew about this before, and I hope all patients will be able to benifit from knowing and researching H.A. Hyaluronic Acid and the real H.A. labeling be allowed on products.
Good Luck guys. Doctors can fix only so much, Patients need to heal. More information in the hands of the patients is a good start.
Hi Lorraine
That is really interesting! Good research. I will post it more prominently as it should help a number of others too.
Earl